I'm sorry about the long delay in my blog post! I know that it has been about 4 months which isn't too great coming from someone who has epilepsy that's so uncontrollable, but I'm hoping to set a better example and make some more regular posts now!
One of the things that my neurologist has started to do is bring me down on my medication. We've started to realise that I do a lot better on less medication. It sounds a little crazy, but it's worth a try! When we told my neurologist our opinion, he agreed and then put in my next appointment letter that "with trepidation" I was being reduced on my Zonegran (one of my tablets)!
This still involves another type of medication though. It was almost like he was thinking:
"Trying to get her on LESS medication so she can reduce her seizures? That'll never work! I know - let's bring in another type of medication!"
And so he did.
This medication was called Perampanal and is a new kind of tablet and to be honest, it didn't go too well. When it comes to side-effects of medications, they don't tend to hit me too badly. But this one just emotionally destroyed me.
Basically, I really wanted to go to this primary school reunion that my friend set up, but because I wasn't able to walk round to the pub where it was set up in case I had a seizure, Mum and Dad said that I couldn't go. I was furious, to be honest. It became a bit of a shouting match! I didn't help matters when I said:
"When I was 13 and I was diagnosed with epilepsy, you both said that you'd never let it get it the way of my independence! But you are because you're not letting me socialise!"
This caused a great deal of tension within the Boulton household because I then said:
"So basically, what you're saying is 'Sorry Becky, you can't go to your reunion. The reason why? It's because you have epilepsy.' Nice."
To be honest, the stuff I was saying was really stuff that I wasn't sure if I was able to control. I wanted to stop it, but I felt like my mind was spinning round at about a hundred miles an hour and I couldn't stop it!
Soon enough, I was storming up to my room with my parents shouting at me to come back and the only thing I was screaming was
"NO! LEAVE ME ALONE!"
My stomach was churning so much with fury and I just wanted to scream because I felt so out of breath from my anger. Suddenly, I started looking around my room, the urge to start to throw things beginning to grow.
I don't think we made a hospital appointment to see my epilepsy nurse so quickly! The fact that we saw my epilepsy nurse and when I explained to her that I didn't like the Perampanal because it was making me angry, it made me feel a lot better when she said that she would have a word with my neurologist and on that same day he rang my dad and said:
"If that's what Rebecca is like on the lowest dose of Perampanal, then I think it would be better to take her off it straight away."
I felt so happy when Dad got off the phone and said that my neurologist was taking me off my Perampanal! I would never want to be on that type of medication again. Even if I was only on that tablet for a week, it's certainly a week I'd never want to repeat!
I am Sophie from Canada, I once suffered from a terrible and Chronic epilepsy ,since i was bone , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly go out of breath,and this illness was really terrible especially when am going out with my friends, i have this constant disorder for about 31 years, this was really a terrible illness ,on thin one day that i was going through the internet,and i came across a post of Mrs Kate on how his son was been cured from epilepsy through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine i used it for 4 weeks as prescribed and i was totally cured of epilepsy within those week of usage,on thin now i have not experience any sign of seizure.if you need his help you can Contact this herbal doctor via his email drwilliams098675@gmail.com for help
ReplyDelete"With Dr Williams,herbal medicine I felt very empowered after my son started his medication and the results came very quickly I might add. Contrary to what my doctor had recommended for my son, (that epilepsy have no permanent cure) I have succeeded in less than 4 weeks to treat all the symptoms associated with my son epilepsy (including the anxiety , and the abnormal behavior ) and within 4 weeks, my son epilepsy was completely gone. Thank you so much for this terrific publication. I also my son have recently experienced a symptom-free of headache , which was nothing short of remarkable, considering the awful state my son was in before I was introduced to dr williams life changing medication,for more information on how to get his medicine you can email him in drwilliam098675@gmail.com
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ReplyDeleteI did what a lot of people do when they want to know more about something. I googled it. I came across Dr ITUA herbal medicine on YouTube so many people thanking him about his good work. My son was epilepsy patent. I wasn’t running all over God’s creation with every man I could find but here I am. I have felt bad about myself for so many years now because of my son epilepsy status. I obviously still have some self-accepting to do but I want to thank Dr Itua for everything he have done for my Son ,after my son taking Dr Itua Herbal medicine my son was completely free from epilepsy within 2 weeks of usage, I think what you are doing is so admirable. you have helped me a lot! I want to definitely reach out to you and thank you for your amazing work. You are a good person, and an extremely talented man. You have helped millions with your herbs, and have really inspired me,and i pray you still continue doing the good work.you can also email him on drituaherbalcenter@gmail.com Or WhatsApp Number..+2348149277967 for help also if you are suffering from the list of disease below...Herpes Virus,Epilepsy,Genital Wart,Autism,Cold Sore,Hiv/Aids,Infertility(Finding it difficult to conceive) Or Man Infertility,