I am coming to the end of a pretty good week when it comes to my epilepsy! My body has shown no signs at all of seizure activity for five days, so I am hoping for nothing for another two days, so I can officially say that I have been seizure free for exactly one week! However, whenever I mention that I have been seizure free for a long time, I immediately have a seizure, so I have said absolutely nothing about it to my family in the hope that I don't have any seizures!
According to one of my friends from the charity shop, the shop isn't going until summer. I'm getting pretty fed up of waiting for it to reopen again, so I am hoping for more volunteering jobs. Seeing as my actual qualification is for working with children, we are wanting to find me a job in a playgroup.
We are wanting to get Personal Independence Payment (PIP) for me this year. We were told that this is a good thing to get if you are between the age of 16 and 64 and have extra care and mobility needs because of having a disability. We have to go for a medical assessment to see if I am entitled for PIP, but we are hoping that they will let me have it!
We have been looking to see what kinds of things that I've been entitled to (PIP, a free bus pass etc.). We were meaning to get all of this last year but we weren't able to get the chance, so hopefully we will be able to get all of it sorted this year!
Tuesday, 10 January 2017
Sunday, 8 January 2017
2017!
Happy New Year!
It's the start of a whole new year, and I'm hoping to have a better year this year than I did last year! Luckily the charity shop will open back up again this year, so I will be able to get out of the house a little bit more.
I met with one of my friends last year for the first time in Oxford to go and see one of our favourite comedians! She also has epilepsy, and we have known each other for over two years now. We knew each other after I shared a picture about 'Epilepsy Awareness Day' on a Harry Potter fan page on Facebook, and she commented under the picture saying that she has epilepsy too! After chatting about epilepsy for a while, I decided (after a few minutes of silent debating in my head!) to request her as a friend on Facebook as she is a similar age to me. But I'm glad I did! It's not often that I am able to find a friend who has epilepsy, likes Harry Potter, and likes Doctor Who who is also a similar age to me!
My epilepsy is being as unpredictable as ever. I am living in hope that my seizures will get better, but I am still having them every week or so. We are still changing my VNS implant around, so hopefully as the levels are changing on that, my epilepsy will begin to improve. Unlike a lot of people, my epilepsy seems to get worse as the amount of medication I have increases. At the moment, I am on three types of medication, so sometimes that means I might have quite a few seizures!
One of my New Year's resolutions this year is to try and get my epilepsy a little more under control. Unfortunately, I can't force that to happen, but hopefully I want to calm it down a little bit more this year!
It's the start of a whole new year, and I'm hoping to have a better year this year than I did last year! Luckily the charity shop will open back up again this year, so I will be able to get out of the house a little bit more.
I met with one of my friends last year for the first time in Oxford to go and see one of our favourite comedians! She also has epilepsy, and we have known each other for over two years now. We knew each other after I shared a picture about 'Epilepsy Awareness Day' on a Harry Potter fan page on Facebook, and she commented under the picture saying that she has epilepsy too! After chatting about epilepsy for a while, I decided (after a few minutes of silent debating in my head!) to request her as a friend on Facebook as she is a similar age to me. But I'm glad I did! It's not often that I am able to find a friend who has epilepsy, likes Harry Potter, and likes Doctor Who who is also a similar age to me!
My epilepsy is being as unpredictable as ever. I am living in hope that my seizures will get better, but I am still having them every week or so. We are still changing my VNS implant around, so hopefully as the levels are changing on that, my epilepsy will begin to improve. Unlike a lot of people, my epilepsy seems to get worse as the amount of medication I have increases. At the moment, I am on three types of medication, so sometimes that means I might have quite a few seizures!
One of my New Year's resolutions this year is to try and get my epilepsy a little more under control. Unfortunately, I can't force that to happen, but hopefully I want to calm it down a little bit more this year!
Me and my friend Indi when we finally met in Oxford!
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