Weaning off!

I thought at first that I wouldn't want to come off any of my Keppra, but once my neurologist said to me that it definitely was a good idea to wean me off that type of my medication, I decided to have a go at coming off the medication.  I knew that he would do it slowly but surely, but eventually we managed to wean me off the Keppra.

He said that there would be some side-effects, so I began to prepare myself for the usual side-effects that someone might experience.  However, I never realised that weaning off Keppra would actually be so difficult.  My neurologist has only put me on different types of medication and moved me up and down on different types - I've never been completely moved off a type of medication before with this much difficulty before.  I was weaned off Epilim due to the loss of my hair, but I didn't find it this hard!

At one point, I almost felt as if my body was going to scream because of the amount of Keppra I wasn't getting.  Towards the end of my decrease, I was only getting 125mg of Keppra in the morning, when I was getting a lot more than that in both the morning and the evening.  When I was completely weaned off my Keppra, I knew that it would mean things would be a lot better, but for some reason, in the back of my mind I had some reservations.

I tried to forget about my worries, but in the end I realised what the matter was.  One moment everything would be fine, but then all of a sudden a massive buzzing burst straight into my mind!  I never felt anything so scary in ages!  I didn't know whether I was the only person who felt these feelings, but one moment I would just feel my buzzing, and then the next second I might feel some voices in my head.  I thought I was going crazy!

We didn't know whether this was anything epilepsy-related, so we decided to do the sensible thing and headed on to the Internet.  We discovered that this buzzing that I was feeling was normal, and in fact a side-effect of being weaned off my Keppra!  I felt so relieved!

I feel as if this buzzing is just about gone now.  Luckily, I think it is gone just in time for the holiday!

Me and Emma on our last holiday in Lanzarote!

Nearly time for Lanzarote!

It's nearly time for our first holiday of the year!

Our first holiday is to Lanzarote - we are going for one week and we are very excited!  Our holiday begins in May and we can't wait to have a break!

We love going to have a relax by the swimming pool.  It is great fun to have a laugh together (I still have a tan from the last holiday!) and try all of the different foods in Lanzarote.  When we were there last time, I was the only one who didn't drink any alcohol, so the waiters decided to put fruit juice into shot glasses at the end of meals so I didn't feel left out!

I love our holidays because it is a chance for me to have some peace and quiet from the pre-school!  It can get pretty loud there sometimes!  On some mornings, I have been asked by children to read about six books.  And I wonder why I get a sore throat!

 

Me and Emma in Lanzarote!

 

 

I had a seizure a couple of days ago too.  I am wondering whether my VNS implant is helping with increasing the amount of energy I get when I wake up, because I think that I get a lot more when I wake up.

 

I also think that it is a bit of a coincidence that my seizure fell on April Fools Day.  Is my body trying to play tricks on me?