Friday, 27 May 2016

Turning on the VNS!

I went to the hospital to get my VNS turned on and the clips taken out today!  In the room there were two epilepsy nurses and one epilepsy nurse took out the clips and then they turned it on.  It has made me feel a little bit nauseous and it's made me cough a bit, but I'm sure after a while I will get used to it.

My surgeon has left the scar from the VNS implant so you can barely see it, so we are all very excited about it!  We are going to see my epilepsy nurse to adjust the settings every two weeks for six months until we get the right setting, but we are sure that we will get it right.

We have been told to keep a seizure diary so we know what setting to put the VNS at.  This involves information such as when a seizure is, the type of seizure it is, and how long it lasts for.  We're very excited about when the VNS implant and we can't wait to see how well it works!

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